Patient rights

Breast cancer patients have a basic right to the best possible care. We are committed to improve treatment, information, care and aftercare. The financial impact of breast cancer on survivors and families is also of particular importance to us.

Round Table on Breast Cancer

How do we try to reach our goals? Think Pink has already organised three Round Table Conferences on Breast Cancer. The most recent one took place on the 26th of November 2020 via Zoom. About thirty important stakeholders discussed different items in order to jointly determine the priorities for the coming year. Researchers, specialist doctors, nurses, government agencies, insurance companies, patient organisations and the pharmaceutical industry all took part in the debate.

9 clear priorities for 2021

After the third Round Table and internal consultation, we have a clearer picture of the 9 priorities we want to focus on in 2021. You will find them below.

1) Working towards ensuring that treatments for breast cancer are only possible in recognised breast clinics and reimbursed only there.

2) Striving for a higher participation rate in the official screening programs (population screening) with a specific focus on Wallonia and Brussels by raising awareness at the local level with the help of the Think Pink municipalities.

3) Ensuring that real world breast cancer data are readily available for policy decisions and research and that relapses are permanently recorded.

4) Updating the Think Pink book and reworking the Think Pink Guide app to better meet the needs of patients and give them a voice in the treatment process.

5) Promoting a more specific use of scalp cooling and a refund, where possible as an alternative to a wig.

6) Following up the pilot project (July 1, 2019 to June 30, 2022) on the reimbursement of gene expression profiling tests to determine susceptibility to chemotherapy, thus avoiding unnecessary chemotherapy.

7) Strengthening doctors, healthcare providers, researchers and hospitals in their communication with patients and building bridges between both parties.

8) Working towards a structured approach, a clear legal framework and continued funding for hospitalisation at home, even after the pilot projects have ended.

9) Closely following up priorities thanks to:
- a monthly internal focus on one priority;
- a quarterly update for the participants of the Round Table;
- an annual evaluation of the priorities;
- regular consultations with the competent ministers.

Read the full report in Dutch
Read the full report in French
Policy Proposals

Think Pink sits in on many working groups, both at regional and national level. This way we can communicate our priorities to policy makers and we can actively help to realize certain dossiers that are important to fellow-sufferers. In that context, Think Pink also organises regular consultations and contacts with the various cabinets of the competent ministers.

Examples of our actions are the reimbursement files at the RIZIV, screening campaigns organised by the regional authorities, adjustments to insurance legislation and many other policy proposals that we consider important to fellow-sufferers and the people around them.

Campaigns and media

Think Pink regularly organises specific campaigns via the media or together with partners. In 2019, there was a campaign sponsored by Roche and Tempo-Team during which we handed out more than 100,000 pralines shaped like breasts at 17 different locations throughout the country. The goal of these campaigns is to encourage women to attend breast cancer screening.